Dynamic Relationality: Embodiment, Identity, and Politics in Life Writing by Authors with Cerebral Palsy

The Department of Disability and Human Development presents a dissertation defense.

Dynamic Relationality: Embodiment, Identity, and Politics in Life Writing by Authors with Cerebral Palsy

by

Brian Heyburn
Doctoral Candidate of Disability Studies

12:00 – 1:00 pm, CDT
Thursday, April 20, 2023
Zoom (info below)

Abstract
This dissertation explores how people with cerebral palsy (CP) represent their own experiences in life writing to create social change not only for themselves and others with CP, but for the larger disability community as well. I conduct critically engaged close readings of three first-person, book-length narratives by authors with CP who demonstrate an awareness of prevailing political power relations and dynamics of oppression as they relate to disability. I analyze Harilyn Rousso’s Don’t Call Me Inspirational (2013), Eli Clare’s Exile and Pride (1999), and Keah Brown’s The Pretty One (2019). My close readings of these books are informed by the following research questions: 1. In what ways do these authors with CP, who demonstrate a politicized orientation to disability, articulate their lived, embodied experiences of CP? 2. How do these authors’ articulations of their experiences manifest and shape their ensuing narratives and analyses of disability? With what additional social dynamics does their work engage? 3. How might the authors’ understanding of their unique CP experiences reveal insights about prevailing social dynamics and disability more broadly? My exploration of these questions leads to my assertion that the ways in which dominant social conditions act upon those who share a specific impairment type, in this case CP, may produce experiences and identities that are, paradoxically, both unique and shared. Through an understanding of this tension, I look at how these authors’ representations of their lived, embodied experiences of CP intersect with the other identities they inhabit and how their positionalities are connected by the presence of myriad, dynamic relationships (e.g., interpersonal, political, environmental). I contend that these relational qualities of their experiences inform their understanding of disability oppression and their thoughts on activism and social change, as reflected in their narratives’ content and formal elements. Ultimately, I argue that one’s impairment-specific location matters deeply to the ways in which disabled people experience and know the world, offering nuanced insights that can be incorporated into larger group efforts toward disability theorizing and organizing for social change.

For individuals needing access accommodations, please send an email to DHDOSA@uic.edu by Thursday, April 6th.

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