Research Project
Virtual Future Planning (V-FIN)
Builds on the _Future is Now_ curriculum, designed to support help families of people with intellectual and developmental disabilities plan for the future, by transitioning to a virtual format and evaluating its efficacy and scalability.
- Principal Investigator
- Heller, Tamar
- Start Date
- 2024-10-01
- End Date
- 2029-08-31
- Research Area(s)
- Active Projects
- Aging
- Cultural Competency
- DHD Research
- Disability
- Intellectual and Developmental Disabilities
- Participation Among People with Disabilities
- Co-Investigators
- Gordon, Jr., Timotheus (T.J.)
- Funding Source
- National Institute on Disability and Rehabilitation Research Field Initiated Program
Abstract
This study enhances the Future is Now curriculum, a nationally recognized program supporting families in planning for the future of adults with developmental disabilities (IDD). Using a virtual format, the project increases accessibility for diverse populations. The research adopts a train-the-trainer (TTT) model, partnering with Area Agencies on Aging (AAA) to train professionals and peer facilitators who will guide families in creating comprehensive future plans. These plans include legal, financial, residential, and vocational considerations, with an emphasis on the active involvement of individuals with IDD. The virtual format integrates self-paced modules, live sessions, and peer support to address emotional and informational barriers to planning. Over three years, the project will involve over 190 families nationwide, comparing outcomes between intervention and control groups. Key measures include caregiver burden, planning activities completed, and self-determination among individuals with IDD. In its final year, the program will scale up, offering virtual training to professionals across aging and disability networks. The study prioritizes cultural competence, ensuring materials are adapted for linguistic and cultural relevance. Findings will inform best practices for future planning, contributing to systemic changes that enhance family and individual autonomy, reduce caregiving stress, and improve long-term outcomes for families navigating aging and disability.