Longitudinal health and intellectual and developmental disabilities

The Longitudinal Health and Intellectual and Developmental Disability Study (LHIDDS) tracked over 1600 adults with intellectual and developmental disabilities over a seven-year period. The study examined the impact of health behaviors on the onset and development of certain secondary health conditions as well as functional limitations within the cohort. The project has been completed and more publications are underway.

Content Section

Funding information

National Institute on Disability and Rehabilitation Research, Rehabilitation Research and Training Center on Aging with Developmental Disability: #90RT5020-03-00 from the U.S. Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

Publications and resources

Neumeier WH, Guerra N, Hsieh K, Thirumalai M, Ervin D, Rimmer JH. (2021). POWERSforID: Personalized online weight and exercise response system for individuals with intellectual disability: A randomized controlled trial. Disability and Health Journal. 2021 Apr 28:101111.  Epub ahead of print. PMID: 33965364.

Murthy, S. & Hsieh, K. (2021). Examining Association between Reported High Cholesterol and Risk Factors in Adults with Intellectual and Developmental Disabilities: A Five Year Follow-Up. Intellectual and Developmental Disabilities, 59(2):112-122.

Hsieh, K., Scott, H., & Murthy, S. (2020). Associated risk factors for depression and anxiety in adults with intellectual and developmental disabilities: Five-Year Follow UpAmerican Journal on Intellectual and Developmental Disabilities, 125(1), pp. 49-63.

Hsieh, K., Murthy, S., Heller, T., Rimmer, J., & Yen, G. (2018). Gum disease as a cardiovascular risk factor in adults with intellectual disabilityJournal of Intellectual Disability Research. 62(3), 187-198.

Hsieh, K.Hilgenkamp, T.M., Murthy, S., Heller, T., & Rimmer, J.H. (2017). Low levels of physical activity and sedentary behavior in adults with intellectual disabilities. International Journal of Environmental Research and Public Health. 4(12), 1503.

Hsieh, K., Rimmer, J., & Heller, T. (2014). Obesity and associated factors in adults with intellectual disability. Journal of Intellectual Disability Research. 58(9), 851-863.

Hsieh, K., Rimmer, J., & Heller, T. (2012). Prevalence of falls and risk factors in adults with intellectual disabilities. American Journal on Intellectual and Developmental Disabilities, 117(6), pp. 442-454.

Team

Principal investigator
Kelly Hsieh, UIC College of Applied Health Sciences